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3 mins read

Disease you might heard, but stories might not : Porphyria

You might have heard about this rare disease, known as Acute Intermittent Porphyria (AIP). In this rare disorder patients experience […]

ikrisuser
June 5, 2023
3 mins read

Maroteaux-Lamy syndrome: Inherited lysosomal storage disorders

Mucopolysaccharidoses (MPS) are a group of inherited lysosomal storage disorders. There are more than 60 lysosomal storage disorders. In MPS […]

ikrisuser
June 4, 2023
2 mins read

Clinical Research & clinical trial supplies

The investigation of human health and disease is known as clinical research. Clinical trials and observational studies are the two main […]

ikrisuser
June 2, 2023
< 1 min read

Managed Access Programs (MAPs): IKRIS Pharma Network

When a patient has a seriously debilitating or life-threatening illness or disease and all available potential treatment options are exhausted […]

ikrisuser
June 1, 2023
2 mins read

Rare disease medicine supplier: Ikris Pharma

A rare disease is one that only affects a small portion of the global population or only affects a limited […]

ikrisuser
May 23, 2023
2 mins read

Clinical trial sourcing: Pharmaceutical industry

Clinical trial sourcing is a sourcing approach in which the comparative product is purchased in a single nation and used in […]

ikrisuser
May 21, 2023
2 mins read

N-acetylglutamate synthetase (NAGS) deficiency : overview

N-acetyl glutamate synthase (NAGS) deficiency is a rare genetic disorder in which ammonia levels in the blood are unusually high. […]

ikrisuser
May 16, 2023
2 mins read

Vosoritide: FDA approved medicine for Achondroplasia

Voxzogo was approved by the FDA in 2021 to increase linear growth in pediatric patients with open epiphyses with Achondroplasia […]

ikrisuser
May 16, 2023
2 mins read

Rare diseases: Why awareness is necessary?

Rare diseases are illnesses that affect only a tiny number of people. The World Health Organisation defines uncommon diseases differently […]

ikrisuser
May 15, 2023
2 mins read

FDA Approves First Respiratory Syncytial Virus (RSV) Vaccine

Arexvy is the first respiratory syncytial virus (RSV) vaccine to receive approval from the U.S. Food and Drug Administration. Arexvy […]

ikrisuser
May 15, 2023
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