A rare disease is one that only affects a small portion of the global population or only affects a limited number of individuals. A rare disease is not specifically defined, but as its name suggests, it is one for which there is a lack of a market size sufficient to attract support and funding for the development of remedies.
If we apply the international estimate of 6% to 8% of the population being affected by rare diseases in India, we have between 72 and 96 million persons affected by rare diseases in the country, which is a significant amount, according to the National Policy of Treatment of Rare Disease. The majority of rare diseases are discovered to be hereditary. Over 7,000 uncommon diseases are known, affecting about 400 million individuals globally. Half of these disorders, which have genetic roots in 80% of cases, afflict youngsters. Only 5% of known rare diseases have one or more approved therapies, making persons with rare diseases collectively one of the greatest underserved patient communities in the world.
Less than 300 medicines are available to address the 7000–8000 uncommon diseases. Less than 1 in 10 individuals receive treatment specifically for their disease, and around 95% of rare diseases have no approved treatments. Due to the lack of information accessible, rare diseases constitute a serious and considerable hazard to public health both globally and in India. Regarding public health and scientific understanding, the topic of uncommon disease is itself complex, less well-known, and constantly changing. The Indian government has implemented a number of programmes under the NPRD to raise awareness of the condition and provide information on its symptoms, diagnosis, and treatment.
Ikris Pharma Network is a comprehensive supplier of generic and innovative drugs for various conditions. Importing drugs from prominent nations like the USA, Europe, Japan, China, and more facilitates patient care by supplying medication that is not even available in India. Through our social media posts and ongoing campaigns, we strive to raise awareness of the issue. “Rare is many, Rare is strong, Rare is proud,” is what Ikris Pharma Network believes. More than 50,000 patients have benefited from our assistance, and to date, Ikris has served more than 500 patients of rare diseases globally, and we hope to continue doing so in as many nations as we can.
Contact us for additional information regarding uncommon diseases and the types of medications we deal with: Ikris Pharmaceutical Network, Number +91 93100 90915.